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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Your Doctor Isn’t the Enemy: Where Medical Trauma Really Comes From



It’s one of the most frustrating paradoxes in chronic illness care:

You finally find a doctor who listens. They believe you. They care. And yet—you still leave appointments feeling unseen, exhausted, or retraumatized.

Why?

Because the system is broken.

And in a broken system, even good relationships can hurt.


The System Is Set Up to Fail You Both

Most doctors go into medicine because they want to help people. Most patients walk into clinics hoping to be heard.

So how did we end up here, on opposite sides of an invisible war?

Short answer: insurance. billing. pharmacy denials. overwork. 15-minute slots. charting requirements. prior authorizations. EMR glitches. burnout. structural inequity. implicit bias. fragmentation. understaffing.

The healthcare system isn’t just a bureaucracy.
It’s a pressure cooker.

And in that environment, everyone is under-resourced.

Even well-meaning doctors are forced to operate within structures that penalize nuance, punish extra time, and prioritize productivity over care. Meanwhile, patients are penalized for being complex, delayed, undocumented, or uncooperative with systems that never gave them the full picture.

This isn’t a breakdown in communication.
It’s a breakdown in infrastructure.


Medical Trauma Is Real, But It’s Not Always Personal

Medical trauma can result from gaslighting, misdiagnosis, neglect, or outright harm. That’s real. But sometimes the trauma isn’t what was done to you, it’s what the system made impossible for you and your doctor.

Trauma can come from:

  • Rushed decisions made under time pressure

  • Providers forced to triage without all the data

  • Delays in treatment caused by insurance red tape

  • Being handed off to new providers every few months

  • Having to prove your illness again because no one reads the chart

It can also come from subtle, cumulative harm:

  • Being disbelieved because you “don’t look sick”

  • Feeling like your pain is invisible to systems that only respond to quantifiable labs

  • Knowing the cost of a scan might shape whether you even mention a new symptom

  • Hearing the phrase “We’ll just wait and see,” one too many times

None of that requires a bad doctor.
It just requires a bad system.


You’re Not Broken. Neither Is Your Doctor. The System Is.

It’s so tempting to turn frustration inward: Maybe I’m too sensitive. Maybe I’m too complicated. Maybe I’m too angry.

Or to turn it outward: That doctor didn’t care. That nurse was cold. That specialist dismissed me.

Sometimes those things are true. But often, the pattern is bigger than the person. You’re not broken for feeling distrust. Your provider isn’t broken for having limits.

The system pits you against each other. It makes the doctor the face of the denial letter. It makes you the face of noncompliance. And it erodes trust on both sides.

But here’s the quiet truth that gets lost in the chaos:
Many doctors carry trauma, too.

They grieve patients they couldn’t save because of system delays. They carry guilt when their 12-hour shifts end before they’ve followed up on all their cases. They fear burnout, litigation, public shaming. They are human, under siege.

Understanding this doesn’t excuse harm, but it does explain why even good doctors can become defensive, detached, or overwhelmed.

When you’re both in survival mode, the relationship becomes reactive instead of reparative.


What Patients Can Do, Without Carrying the Blame

You can’t fix the system on your own. But you can:

  • Learn how the system forces constraints (so you don’t take it personally)

  • Name the real barrier (“This sounds like an insurance issue. What are our workarounds?”)

  • Clarify the emotional moment (“I trust you. I’m just frustrated at the process.”)

  • Find moments of alliance (“I know your hands are tied. How can I help move this forward?”)

You don’t owe your provider perfection.
But understanding how they are being crushed by the same machine can sometimes soften the disconnect.

If you have a provider who is trying, let them know it matters. Even a simple “Thanks for hearing me out today” can restore mutual humanity. That doesn’t mean you ignore harm, it means you recognize effort.

And when the effort isn’t there? You’re allowed to seek different care. The goal is not to tolerate abuse, it’s to accurately aim your frustration so that your healing path stays clear.


What Doctors Can Do (And Many Already Try To)

Good doctors are out there. Many of them:

  • Fight insurance on your behalf

  • Validate your lived experience

  • Document carefully so you aren’t dismissed later

  • Adjust language to support disability claims

  • Learn from your advocacy instead of resisting it

  • Collaborate with your other specialists instead of operating in silos

The best ones don’t just tolerate questions, they welcome them.

They see you as part of the care team, not a barrier to it.

They aren’t threatened when you show up prepared. They’re relieved.

They don’t promise perfect outcomes, but they offer honest effort, which is sometimes the most healing thing of all.


It’s OK to Feel Hurt. It’s Also OK to Hold Grace.

You don’t have to minimize what you’ve been through. Medical trauma is real. But blaming the entire field of medicine—or expecting any one doctor to undo all the harm—won’t bring healing either.

This isn’t about toxic positivity. It’s about complexity.
You can:

  • Grieve the care you didn’t get

  • Honor the harm that happened

  • And still work toward trust, even if it’s slow

You’re not imagining the brokenness.
But you’re not alone in facing it.

You and your doctor? You may both be casualties of the same flawed machine.

And when you stop seeing each other as the enemy, you just might find a way forward—together.

Ready to advocate for yourself without burning out? Download the My Care Companion Patient History Tracker to document what matters, stay organized, and make the most of every appointment.

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