Skip to main content

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Terms and Conditions


Effective Date: March 1, 2025

Welcome to Patient Empowerment Pulse. By accessing this website, you agree to the following terms and conditions. If you do not agree with any part of these terms, please do not use this site.


1. Purpose of This Site

Patient Empowerment Pulse exists to provide informational content related to healthcare, chronic illness management, patient advocacy, and wellness.

The information on this website is for general educational and informational purposes only. It is not medical advice and should not replace consultations with qualified healthcare professionals. Always speak with your healthcare team before making medical decisions.


2. Use of Content

All content on this site, including articles, images, and downloadable materials, is the intellectual property of Patient Empowerment Pulse unless otherwise noted.

You may:
✔ Share links to our articles on social media or other platforms (with proper credit).
✔ Print or save content for personal use only.

You may NOT:
❌ Reproduce, republish, or distribute our content for commercial purposes without express written permission.
❌ Use our content to create derivative works (e.g., eBooks, courses) without permission.


3. Affiliate Links & Sponsored Content

This site may contain affiliate links. If you click on an affiliate link and make a purchase, we may receive a small commission at no additional cost to you.

All affiliate relationships will be disclosed clearly within the content itself.

We only partner with brands and products we believe are relevant and beneficial to our audience, but we cannot guarantee any specific outcome from using recommended products or services.


4. Comments & Community Guidelines

We welcome comments and discussion, but we expect all visitors to engage respectfully.

We reserve the right to:
✔ Remove comments that are offensive, defamatory, spammy, or off-topic.
✔ Ban users who repeatedly violate these guidelines.

All comments represent the opinions of the commenter, not Patient Empowerment Pulse.


5. Disclaimer of Liability

The information provided on this website is offered as-is without any guarantees of accuracy, completeness, or timeliness.

By using this site, you agree that Patient Empowerment Pulse and its owners, writers, and contributors are not liable for any direct or indirect damages resulting from reliance on the content provided here.

Always consult a licensed healthcare professional for medical advice, diagnosis, or treatment.


6. External Links

We may link to external websites for additional information or recommended resources. We are not responsible for the content, privacy policies, or practices of any third-party sites.


7. Changes to These Terms

We may update these terms from time to time. The effective date at the top of this page will reflect the latest revision. Your continued use of the site after changes are posted indicates your acceptance of the updated terms.


8. Governing Law

These terms are governed by and interpreted in accordance with the laws of the United States. Any disputes will be resolved in the appropriate legal jurisdiction.


9. Contact Us

If you have any questions about these terms, you can reach us at:
📧 patientempowermentpulse@gmail.com



Comments

Popular posts from this blog

Scripts for Hard Conversations: Asking for Help Without Feeling Small

  When you're chronically ill, asking for help can feel like its own kind of symptom—something invisible, painful, and hard to explain. It doesn’t matter whether you’re asking for a referral, accommodations, a test, or simply compassion. The vulnerability of needing something you can't provide for yourself often clashes with the power dynamics of medical systems, workplaces, and even friendships. But here’s the truth: asking for help doesn’t make you smaller. It makes you strategic . This article is here to offer something practical: actual scripts—words you can try on, edit, or use as inspiration for your next hard conversation. Whether you need to navigate a medical gatekeeper or explain a boundary to someone who doesn’t quite get it, these scripts are here to lend you language until your voice feels strong again. I. Asking for Accommodations Without Apologizing Scenario: You need a workplace or school accommodation (flexible deadlines, remote attendance, sensory consid...

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Lupus Symptoms and Awareness: The Purple People Eater You Never Invited

Introduction Some diseases announce themselves with dramatic symptoms that scream for attention. Others, like lupus, slink quietly into your body, set up camp, and gradually turn your immune system into a full-time chaos gremlin. Today, we’re talking about the Purple People Eater that is lupus—a disease that doesn’t just attack; it decorates you in purple ribbons from the inside out. Why Is Lupus Awareness Color Purple? Lupus’s signature color is purple, and there’s more to it than just branding. The Lupus Foundation of America and other advocacy groups use purple to symbolize both the bruising caused by inflammation and the resilience of those living with the disease. Whether it’s the malar rash blushing your cheeks, the livedo reticularis marbling your skin, or the deep muscle aches that make your limbs feel like they’ve been tenderized, purple is the color of autoimmune war. What Are the Symptoms of Lupus? According to the Johns Hopkins Lupus Center , systemic lupus erythemato...