Skip to main content

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...
Post a Comment

Privacy Policy

 Privacy Policy for Patient Empowerment Pulse

Welcome to Patient Empowerment Pulse! Your privacy is important to us, and we want you to feel confident in how your information is handled when you visit our site. This Privacy Policy explains what data we collect, how we use it, and the measures we take to protect your privacy.

Information We Collect

When you visit Patient Empowerment Pulse, we may automatically collect certain information about your device and browsing habits, such as:

  • Your IP address

  • Browser type and operating system

  • Pages viewed and time spent on the site

  • Referral source (how you found us)

If you choose to subscribe to updates, leave a comment, or submit a contact form, we may collect your name, email address, and message — but only with your consent.

How We Use Your Information

We use this data to:

  • Improve site content and functionality

  • Understand what topics are most valuable to our readers

  • Respond to your inquiries and comments

  • Send you updates (only if you subscribe)

We never sell your personal information, and we only share data when necessary for services like analytics (e.g., Google Analytics) that help us improve the site.

Cookies

We use cookies to enhance your browsing experience, remember preferences, and gather traffic data. You can control or disable cookies through your browser settings, though this may affect how some features work.

Third-Party Links

This site may include links to external websites. We are not responsible for the privacy practices of those sites, so please check their policies if you follow external links.

Data Security

We take reasonable steps to protect your information, but please remember that no method of online transmission is 100% secure.

Your Rights

You have the right to request access to the personal data we hold about you, and to ask for corrections or deletion where appropriate. To make a request, contact us at: [Your Contact Email].

Updates to this Policy

We may update this Privacy Policy from time to time. Any changes will be reflected on this page.

Effective Date: March 1, 2025

Comments

Post a Comment

Popular posts from this blog

Scripts for Hard Conversations: Asking for Help Without Feeling Small

  When you're chronically ill, asking for help can feel like its own kind of symptom—something invisible, painful, and hard to explain. It doesn’t matter whether you’re asking for a referral, accommodations, a test, or simply compassion. The vulnerability of needing something you can't provide for yourself often clashes with the power dynamics of medical systems, workplaces, and even friendships. But here’s the truth: asking for help doesn’t make you smaller. It makes you strategic . This article is here to offer something practical: actual scripts—words you can try on, edit, or use as inspiration for your next hard conversation. Whether you need to navigate a medical gatekeeper or explain a boundary to someone who doesn’t quite get it, these scripts are here to lend you language until your voice feels strong again. I. Asking for Accommodations Without Apologizing Scenario: You need a workplace or school accommodation (flexible deadlines, remote attendance, sensory consid...
Post a Comment
Read more

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...
Post a Comment
Read more

The Best Apps for Managing Chronic Illness: From Symptom Tracking to Medication Reminders

  Living with a chronic illness means juggling a constant stream of medical appointments, medications, symptoms, and energy levels. Fortunately, technology can help lighten the load. Whether you need an easy way to track symptoms, manage medications, or stay on top of doctor’s visits, there’s an app for that. Here’s a curated list of the best apps to help chronic illness patients manage their health with less stress and more control. 1. MySymptoms: Best for Symptom & Food Tracking Why It’s Great: If you have a chronic illness affected by diet (like IBS, autoimmune conditions, or migraines), MySymptoms helps identify food triggers. Log meals, symptoms, and lifestyle factors to uncover hidden patterns. Key Features: Track symptoms and possible dietary triggers. Generate reports to share with doctors. Identify patterns in flare-ups. Available on: iOS & Android 2. Medisafe: Best for Medication Reminders Why It’s Great: Managing multiple prescriptions? Medisafe...
Post a Comment
Read more