Skip to main content

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Tiny Wins: 10 Health Victories That Deserve Celebration

 


When you’re living with chronic illness, it’s easy to feel like you’re falling behind. Goals get delayed. Symptoms flare. Plans change. And even when you do make progress, it’s often invisible to everyone else.

That’s why celebrating tiny wins matters so much.

Tiny wins are those small, often-overlooked victories that signal growth, resilience, and effort. They may not look impressive on the outside—but for us, they’re everything. These moments remind us that we’re still moving forward, even if the pace is slow.

Here are ten tiny (but mighty) wins that absolutely deserve recognition:


1. Getting Out of Bed When You Didn’t Want To

Some mornings, just sitting up takes more strength than most people realize. If you managed to stand, shuffle to the kitchen, or make it to the couch—you fought gravity and won. That’s a victory. Even if all you did after that was rest, you still showed up for the day.

2. Drinking Enough Water

Hydration impacts everything from brain fog to joint pain. If you remembered to drink water, refill your bottle, or use a hydration app today, that’s a tiny win with a big payoff. Your future self thanks you, even if your current self needed three reminders to make it happen.

Affiliate help: The Pure Enrichment XL Heating Pad can also make hydration more appealing by reducing pain, which helps motivate movement and self-care.

3. Saying “No” to Protect Your Energy

Setting boundaries is brave. It means you’re prioritizing long-term well-being over short-term guilt. Whether you skipped a call, rescheduled a plan, or declined a favor—go you. That one “no” might be the reason you’re still upright tomorrow.

4. Taking Your Meds (Even When You Didn’t Want To)

Medication fatigue is real. Remembering your doses, keeping up with refills, and dealing with side effects is no small feat. If you managed it today, that’s a gold star. You made a choice to care for yourself, even when it’s complicated or annoying.

5. Asking for Help

It takes strength to say, “I can’t do this alone.” Whether you asked a friend for support, emailed your doctor, or just texted someone you trust—that’s connection, and that matters. There is courage in vulnerability, and you reached for it.

6. Resting Without Guilt

Choosing rest isn’t giving up. It’s choosing to listen to your body instead of fighting it. If you let yourself nap, unplug, or move slowly today—celebrate that. You honored your limits, and that is a form of wisdom.

7. Eating Something Nourishing

Sometimes we live on snacks and survival food—and that’s okay. But if you managed to eat a balanced meal, prep a veggie, or fuel yourself intentionally? That’s worth noticing. It means you’re nurturing your body, even when it’s hard.

Affiliate help: Tools like the COSORI Air Fryer or a high-quality nonstick skillet can make quick, spoonie-friendly meals easier and less cleanup-intensive.

8. Moving Your Body (In Any Way)

Whether it’s a stretch, a slow walk to the mailbox, or a dance party in your chair—movement is a win. You honored your body’s capacity today. That counts. And every small act of movement helps reinforce your connection to your physical self.

9. Managing a Flare Without Spiraling

If you found yourself in a symptom spike but didn’t go full doomscroll or self-blame spiral—that is resilience. Being kind to yourself during the hard parts is a huge deal. You met the hard with grace, and that is everything.

10. Smiling at Yourself in the Mirror

This one might feel small, but it’s huge. Smiling at yourself—even on the hard days—is an act of self-recognition. You’re still here. You’re still fighting. And that’s beautiful. Sometimes the smallest gestures hold the deepest truths.


Why This List Matters

We live in a culture that only celebrates big, visible wins. But when your body limits your capacity, any forward motion is heroic.

You don’t have to wait for remission, productivity streaks, or symptom-free days to feel proud of yourself. You can be proud right now—for every single thing you’re doing to care for yourself in the body you have today.

So the next time you:

  • Stand up when you don’t feel like it

  • Cancel something you can’t handle

  • Take a nap with intention

...don’t brush it off. Call it what it is: a win.

You’re doing better than you think. And every spoon counts.

Comments

Popular posts from this blog

Scripts for Hard Conversations: Asking for Help Without Feeling Small

  When you're chronically ill, asking for help can feel like its own kind of symptom—something invisible, painful, and hard to explain. It doesn’t matter whether you’re asking for a referral, accommodations, a test, or simply compassion. The vulnerability of needing something you can't provide for yourself often clashes with the power dynamics of medical systems, workplaces, and even friendships. But here’s the truth: asking for help doesn’t make you smaller. It makes you strategic . This article is here to offer something practical: actual scripts—words you can try on, edit, or use as inspiration for your next hard conversation. Whether you need to navigate a medical gatekeeper or explain a boundary to someone who doesn’t quite get it, these scripts are here to lend you language until your voice feels strong again. I. Asking for Accommodations Without Apologizing Scenario: You need a workplace or school accommodation (flexible deadlines, remote attendance, sensory consid...

Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

The Best Apps for Managing Chronic Illness: From Symptom Tracking to Medication Reminders

  Living with a chronic illness means juggling a constant stream of medical appointments, medications, symptoms, and energy levels. Fortunately, technology can help lighten the load. Whether you need an easy way to track symptoms, manage medications, or stay on top of doctor’s visits, there’s an app for that. Here’s a curated list of the best apps to help chronic illness patients manage their health with less stress and more control. 1. MySymptoms: Best for Symptom & Food Tracking Why It’s Great: If you have a chronic illness affected by diet (like IBS, autoimmune conditions, or migraines), MySymptoms helps identify food triggers. Log meals, symptoms, and lifestyle factors to uncover hidden patterns. Key Features: Track symptoms and possible dietary triggers. Generate reports to share with doctors. Identify patterns in flare-ups. Available on: iOS & Android 2. Medisafe: Best for Medication Reminders Why It’s Great: Managing multiple prescriptions? Medisafe...