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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Explaining Fatigue to Healthy People – A Script You Can Use



We've all been there: trying to explain chronic illness fatigue to healthy people is like trying to describe color to someone who’s never had sight. And if you’ve ever been told, “I get tired too,” then yeah—you know how wildly misunderstood this conversation can get.

But here’s the thing: you shouldn’t have to either suffer in silence or burn yourself out trying to educate everyone from scratch. So today, I’m giving you something better—a ready-made script. You can tweak it to your voice, your people, your comfort level. But the heart of it stays the same.

Because I’ve been there. I am there. And if you’re living with chronic fatigue from autoimmune disease, dysautonomia, long COVID, or anything else that jacks up your energy systems, then this is me sliding a cup of coffee across the table and saying: here’s how we tell them.

The Script – “It’s Not Just Tired”

“I want to explain something that’s hard to see from the outside—fatigue in chronic illness isn’t just tiredness. It’s not what you feel after a long day or a bad night’s sleep. It’s like my whole body’s battery is damaged. Even after rest, it doesn’t recharge the way yours probably does.”

“Some days, it feels like I’m moving through wet concrete. Like gravity turned up to 11. Other times, I can look fine but still be dealing with a total system shutdown under the surface. My brain fogs. My muscles ache. My reactions slow. And no amount of caffeine or willpower fixes it.”

“The worst part? It doesn’t always match what I’ve done. I can rest all day and still crash the next. Or I can do something tiny—like showering—and be completely wrecked for hours afterward. That unpredictability is part of what makes it so isolating.”

“So when I cancel plans or say I need to rest, it’s not laziness or flakiness. It’s me managing a body that doesn’t play by normal rules. And I know it’s hard to understand from the outside—but I appreciate you listening.”

Why This Script Works

  • It starts with empathy, not confrontation.
  • It names the key difference between tiredness and medical fatigue (non-rechargeable energy systems).
  • It paints a vivid picture with metaphors people can relate to—wet concrete, gravity, shutdown.
  • It preemptively counters misconceptions like laziness or unreliability.
  • It invites connection, not pity.

You can deliver this over coffee, in a text, at the start of a conversation, or tucked into a longer explanation. It’s not perfect for every situation, but it gives you something solid to reach for when words are hard.

Add Your Details

Make it yours. Maybe add a line about what fatigue looks like for you:

  • “It hits hardest in the afternoons.”
  • “It messes with my speech or coordination.”
  • “I don’t always look sick, but I’m fighting my body constantly.”

Your story deserves specificity. But you also deserve not to have to start from scratch every time.

Final Thoughts

There’s no perfect way to explain something invisible. But having language helps. It protects your energy. It gives you something to lean on when you’re too tired to find the words.

So use this. Modify it. Keep it in your notes app. And next time someone well-meaning asks what fatigue really feels like, you’ll be ready.

And hey—if this helped? Drop me a Ko-Fi at ko-fi.com/patientempowermentpulse to keep resources like this coming.

We’re all just trying to survive in bodies that don’t make it easy. Let’s make the explaining part a little easier, too.

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